_alpha-girl-taryn-murphy-revisited-work-in-progress-trailer.jpg "ALPHA GIRL: TARYN MURPHY REVISITED (WORK-IN-PROGRESS TRAILER) from bridge balance condition Video Screenshot Preview")
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⏲ Duration: 1 min 80 sec
✓ Published: 01-Mar-2017
✓ Published: 01-Mar-2017
Description:
12 years ago, I completed a 30-minute documentary film about Taryn Murphy, a then-21-year-old young woman, living in Baltimore, suffering from a rare lysosomal storage disease known as Alpha Mannosidosis. In the movie, I explored the causes and symptoms of Taryn's condition while keeping the main focus on the lives of Taryn and her parents, Paul and Debbie. Since that time, the documentary has followed its own trajectory through the few organizations that support research into the disease, as we
12 years ago, I completed a 30-minute documentary film about Taryn Murphy, a then-21-year-old young woman, living in Baltimore, suffering from a rare lysosomal storage disease known as Alpha Mannosidosis. In the movie, I explored the causes and symptoms of Taryn's condition while keeping the main focus on the lives of Taryn and her parents, Paul and Debbie. Since that time, the documentary has followed its own trajectory through the few organizations that support research into the disease, as we
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