_the-rarest-ones.jpg "The Rarest Ones from lamia Video Screenshot Preview")
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⏲ Duration: 87 sec
✓ Published: 02-Mar-2015
✓ Published: 02-Mar-2015
Description:
Does being rare mean to be ignored?nnWatch the heartbreaking experience of Tommy, a 22-year-old suffering from Hyperphenylalaninemia, getting naked in the wild to stand out for people affected by rare diseases.nn“The best work you may never see.” - SHOOT, Feb. 24, 2015nnSUPPORT the VIII Rare Disease Day on the 28th February 2015.nSHARE the story of Tommy, if you care too.n#ICareAboutRarennLearn more about Tommy:nhttp://youtu.be/ukTaDZXJeQUnnWatch the backstage video:nhttp://youtu.be/TQ4xdRbs
Does being rare mean to be ignored?nnWatch the heartbreaking experience of Tommy, a 22-year-old suffering from Hyperphenylalaninemia, getting naked in the wild to stand out for people affected by rare diseases.nn“The best work you may never see.” - SHOOT, Feb. 24, 2015nnSUPPORT the VIII Rare Disease Day on the 28th February 2015.nSHARE the story of Tommy, if you care too.n#ICareAboutRarennLearn more about Tommy:nhttp://youtu.be/ukTaDZXJeQUnnWatch the backstage video:nhttp://youtu.be/TQ4xdRbs
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