*ELSIcon2022 Panel: Engagement with Historically Marginalized Communities from risk definition health Watch Video
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⏲ Duration: 58 min 69 sec ✓ Published: 25-Aug-2022
Description: The practice of community engaged research is grounded in ethical, practical, social, and racial justice rationales. Yet community engagement (CE) in genomic and precision medicine research raises a myriad of ELSI issues when historically marginalized communities are involved, such as the definition of and risk for group harm, data and benefit sharing, and in-group and out-group biases. Little attention has been given to the positionality of stakeholders in community engaged research - some of w
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